On this page, I would love to learn about your story and how you are doing. It doesn't matter how far along you are in the process; whether it has barely begun or you are like me, and are several years out. This is your place to share of your journey, your thoughts, your concerns, your hopes and your dreams. Please use the comment box below, or the CONTACT ME form on the left side bar of the blog, which goes straight to my email. I want to create a specific page eventually for more stories, as well as pictures of other recipients. If you have any questions, please share those on the FAQ tab.
My journey began at birth. I was born w cystic fibrosis. It attacked my liver & caused cirrhosis. I understand your frustration on comments about self destructing your own liver! I was 18 when dr. Simon told me that a liver transplant was in my future. I didn't think too much about it, after all I had just graduated & had my whole life ahead of me. Fast forward about 5 years to the dr. Who performed my hernia repair surgery. He informed me that my liver was in full failure mode. I needed to be added to the transplant list. This was 1988. Okc did not yet have their program yet, so I went to omaha, Nebraska.
ReplyDeleteI am sorry, Alicia. (I'm assuming this is Alicia) I did not see your comment. Busy this summer. I am sorry too for your struggles. I remember looking into Omaha when I learned I needed a transplant, but then discovered that OKC had just opened a transplant facility. Felt so blessed to be so close. I hope you are doing well and enjoying your kiddos. God bless!
Delete